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July 23rd, 2008
10:50 am

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Last post from Martin
 
Live Journal update that never was.
This was an update to Sue’s live journal that I wrote out in Hospital one night perhaps in Swindon that never made it to the site. Written in the middle of my WWW (What We Want) book.
Tuesday
Phone call from Robin, while I was home waiting for the Double Glazing guys to finish off and then starting to tidy up. It was late in the afternoon and Sue had been taken into Bath hospital after fainting at her parents home. I quickly packed my bags phoned my Sams mentor in the car as I was due on a shift the following day, and called Mark Allen from the hard shoulder of the motorway as I did not have the correct address for hospital although I had been there before as Sue had worked there for a number of years.
Sue had been sitting at home stood up I think to go and have a lie down and then fainted onto the floor. Her Mum Phyllis was with Sue and she called for an ambulance in a panic. Robin was out at the time and he returned home to find an ambulance and paramedic car on the drive.
Sue had another episode in AE, again very similar to fainting but unconscious for anything from 3-8 minutes. We never did get to the bottom of what an episode was but they seem to be brought on by being in some form of discomfort which ranged from pain, to hot, general discomfort, and stress such as CT or MRI scan. Some of these she could control and other’s she could not the only description I got form Sue was that she felt funny just before and she would have a rash appear very quickly on her body and disappear as quickly.
 While at Bath Sue had a head CT and was then taken from there to another ward.  I took Sue back to Phyllis and Robin’s house on the Wednesday at 1230 PM and Phyllis and I spent the day with her after a good tea inside her and she slept well.
Thursday
I attempted to take Sue home on Thursday as she was due an appointment with Doctor Harris and in light of the fact Sue had not been well we thought that this would be very worthwhile. Stopped via the Polly Tea rooms in Marlborough to break the journey up and for lunch Sue had a cheese jacket potatoes one of her favourite meals. She had another episode as she got very hot on the way out. (Still haven’t paid the bill)
Taken to Swindon hospital AE where she had a chest ray and another load of blood work done similar to Bath including tumour marker test. Transfer into the acute assessment ward and had another episode because she could not get comfortable. Later transferred to Dove Ward (Oncology unit) at 2 AM and then I left to stay at Mark’s and Helen house in Swindon at 3 AM.
Friday another good day Della and Elaine came over and assisted Sue in having a wash and she looked a lot brighter. Sue was meant to have another scan to rule out blood clots in her lungs and she had another episode in the scan so this was postponed. I had told the staff that this was likely to happen if I was not with Sue to help her stay calm and this happened a couple of times until they released that it would help them if I was with Sue. So I ended at Sue’s side in lead apron for a couple of CT scans and sitting on a chair while she had an MRI scan in the end.
After the failed scan Sue came back to the Dove ward and we had a meeting with a Doctor Chan (Surname) and a Doctor Luke (first name). They explained that Sue is very slight and has no running reserve. Swindon where working on the assumption that she was fainting, where in fact Sue’s cancer had spread to her spine and her brain and she should have been on some anti fitting drugs and steroids. Can’t blame Swindon because of all Sue’s blood work and the scans that she did have where coming back as normally. Although they did know was that she had a very high pulse rate 140 at rest and that she was fainting having episodes which where becoming more frequent.
Sue was moved to the Linet Ward around 7 PM I left at 9 PM.
Saturday arrived at 930 AM after going shopping at Asda for some more clothes, Sue had another episode before I arrived as she later told me because she could not sleep and was uncomfortable. I went down with Sue for the Scan and she seemed to sleep through most of it and then back up to the ward. Spoke to Clayton the chap I had done some work for to let him know I was pretty unavailable also an old client that had left a message, also the Cruise Company via Thompsons to try and postpone the Mediterranean Cruise we had booked or to do a name change.
I am pretty sure although I cannot say for certain this was the point that Sue asked me to stay with her at night as well. First night I was sleeping on chair second night I slept on a mattress and I did not leave her side at night for the next 16 nights until she drifted away.
This is where the update finished in my book and to explain a little further I was asked by a friend to explain my story.
 
To answer your question “We would love to hear your story Martin” Is a difficult one to answer as it is not my story but our story.
The bare bones are I lost my wife to Breast Cancer on the 5th of May this year at the age of 38 with a prognosis of 2 years she died after 6 months from the start of treatment.
Sue’s Cancer was diagnosed in October 20007 at a fairly advance stage i.e. external tumour and it had already spread to her glands and had secondary bone cancer. We were told at the time that because it was so advanced that we were not looking at a cure but at containment and at best we were looking at 2 years.
Sue was very late to diagnosis mainly because she did not share her condition with anybody and decided not to tell anyone. It was only when I forced her to go to the GP as I was so concerned about her condition.
I can’t blame Sue for not doing anything sooner and I guess her reasons where many and varied I had lost my Mother to Cancer at a young age and she knew her parents would not handle it well. Sue had worked for the NHS for close to 20 years and I guess she knew what the implications where.
Sue initially responded well to treatment with 6 lots of Chemo and 1 lot of Radiotherapy tumour markers had all gone down etc  and the medical team where pretty happy.
Unfortunately this did not last and she fainted at her parents’ home and she spent one night in Bath Hospital and after several more faints/fits I took her back to her parents home to rest for a night and then on the way home she fainted/fitted again so ended up in Swindon hospital for 9 nine days and after being stabilised Sue was brought back to Slough Hospital where She worked and had been treated.
Although initially they were unsure what was causing Sue to faint/fit at Swindon on arrival at Slough they were pretty sure that Sue’s Cancer had spread to either her spine and or her brain. Pretty devastating news but this was what I had expected to hear and was just glad that we had managed to get her close to home.
Although a treatment plan was put into place on the Friday for a full body MRI scan followed by a spinal tap if necessary. This was cancelled on the Monday as Sue rapidly went downhill over the weekend. It was expected that she would pass away that day. After being unconscious for 3 days Sue woke and was able to talk very briefly and sporadically for the next week until she drifted away the following Monday.
That final week was a very tough but it also allowed many of Sue’s friends and family to come and say goodbye to her. For me most importantly I was able to tell how much I loved her and also to talk to her about her funeral plans which turned into a celebration of her life and to let her know that I would be okay.
I had read about the 5 stages of grief and although not fully at the acceptance stage I did my best for Sue in those final weeks and throughout her treatment. 
Where am I now? Currently in New Zealand spending some time away to regroup and come back to the UK and continue with my life.  

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June 5th, 2008
07:05 am

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Post from Martin
 
 
What follows is all the printed material that I had produced for the Celebration of Sue’s life I have placed it on this journal or web page for the people that were unable to attend the Celebration of Sue’s life. Or those like myself who would wish to reflect on her life.
 Obituary.
Susan Margaret Belcher (Sue)
Drifted away peacefully Monday 5 May 2008
Sue enjoyed 37 happy years in Wiltshire and Berkshire.
She gave a warm, smiling welcome to visitors and patients at Wexham Park Hospital for 15 Years
Sue will be loved and missed always by her husband Martin, her parents and sister, family and many close friends.
Private family service at Slough Crematorium followed by a celebration of her life on Wednesday 14 May 4.30pm at St Margaret’s Church, Iver Heath, all welcome.
No flowers please. Donations to 1st Iver Heath Scout Group c/o E Sargeant and Sons
The Obituary was posted in the local papers with thanks to Martin Gibbons for helping me pull this together at a difficult time and under a pretty tight deadline.
 
Order of Service Slough Crematorium 
Wednesday 14 May 2008 3.30PM
1)    Verses
2)    Opening Sentence and Prayers
3)    Lord is my Sheppard
The Lord's my shepherd, I'll not want.
He makes me down to lie
In pastures green, he leadeth me
The quiet waters by.

My soul he doth restore again,
And me to walk doth make
Within the paths of righteousness,
Even for his own name's sake.

Yea, though I walk in death's dark vale,
Yet will I fear no ill,
For thou art with me, and thy rod
And staff me comfort still.

My table thou hast furnished
In presence of my foes:
My head thou dost with oil anoint,
And my cup overflows.

Goodness and mercy all my life
Shall surely follow me,
And in God's house for evermore
My dwelling place shall be
4) Reading and short reflection
5) Lord of all Hopefulness
Lord of all hopefulness, Lord of all joy,
Whose trust, ever child-like, no cares could destroy,
Be there at our waking, and give us, we pray,
Your bliss in our hearts, Lord, at the break of the day.
Lord of all eagerness, Lord of all faith,
Whose strong hands were skilled at the plane and the lathe,
Be there at our labours, and give us, we pray,
Your strength in our hearts, Lord, at the noon of the day.

Lord of all kindliness, Lord of all grace,
Your hands swift to welcome, your arms to embrace,
Be there at our homing, and give us, we pray,
Your love in our hearts, Lord, at the eve of the day.

Lord of all gentleness, Lord of all calm,
Whose voice is contentment, whose presence is balm,
Be there at our sleeping, and give us, we pray,
Your peace in our hearts, Lord, at the end of the day.
6) “Miss Me But Let Me Go.” Martin Belcher
 
When I come to the end of the day,
And the sun has set for me,
I want no rites in a gloom-filled room,
Why cry for a soul set free?
Miss me a little, but not for long,
And not with your head bowed low.
Remember the love we once shared,
Miss me, but let me go
 
For this is a journey we all must take,
And each must go alone,
It’s all a part of the Master’s plan
A step on the road to home.
When you are lonely and sick of heart,
Go to the friends we know,
And bury your sorrows in doing good deeds,
Miss me, but let me go.
 
by Robyn Rancman
 
7) Committal
8) Prayers of Thanks giving and Blessing
I did not produce a printed order of service for the Crematorium service as both Hymns where to be found in the hymn books in the Chapel. It was only produced so that I had a clear understanding of what was happening. My Thanks go to Chaplin Paul Deeming for a wonderful service both at the Crematorium and the Church
The following order of service is a what I presented to the Printers and the finished article was somewhat different due to layout  etc.
 
Sue Belcher
18 April 1971 – 5 May 2008
 
        
 
A celebration of Sue’s life
14 May 2008
St Margaret’s Church, Church Road, Iver Heath, Bucks
Entrance music “The Living Daylights” by A-ha
 
Introductions and opening Prayers
 
Hymn “Morning has Broken”
 
Morning has broken, like the first morning,
Blackbird has spoken, like the first bird.
Praise for the singing, praise for the morning,
Praise for them springing fresh from the Word.

Sweet the rain's new fall, sunlight from heaven,
Like the first dewfall, on the first grass;
Praise for the sweetness of the wet garden,
Sprung in completeness where His feet pass.

Mine is the sunlight, mine is the morning.
Born of the one light Eden saw play.
Praise with elation, praise every morning,
God's re-creation of the new day.
 
A reflection by Gerald Beddard
 
I will at a later date on my return to the UK place a copy of Geralds relfelction here.
 
This poem “The Golden Chain of Friendship” was originally read by Gerald at Sue and Martin’s Wedding  on 13 August 1994
Friendship is like a golden chain
the links are friends so dear
And like a rare and precious jewel
It's treasured more each year
It's clasped together firmly
With a love thats deep and true
And it's rich with happy memories
And fond recollections, too
Time can't destroy its beauty
For as long as Memory lives
years can't erase the pleasure
that the joy of friendship gives
For friendship is a priceless gift
That can't be bought or sold,
But to have an understanding friend
Is worth far more than Gold
And the golden chain of friendship
Is a strong and blessed tie
Binding kindred hearts together
As the years go passing by
Helen Steiner Rice
An address by Anthony Codling, a  friend and member of the Fewings family
 
Anne, Sue’s sister will be marrying Anthony’s Brother Craig in July and although they were not married at the time. Sue had a very close relationship with Anthony and I was more than happy to be referring to Anthony as a member of the Fewings family. With Sue’s Family permission I would like to add a copy of their words here.
 
 
The Eulogy by Martin Belcher
 
Eulogy for Sue
 
I wanted to say a few words about the Sue I knew.
My companion, wife and friend for 17 years.
I first met Sue on a ‘Pamoja’ project. Pamoja is a Swahili word meaning ‘together’. We spent 18 months as a part of a team preparing for a community development trip in Kenya.
As part of this preparation we had a team social evening ice skating. Sue really wanted to skate but was worried about falling over. So my first evening with Sue was spent holding her hand and dragging her round Swindon ice rink.
Apparently she went home with a huge grin on her face.
Sue had a passion for horses – particularly one called Gypsy. Horses are nervous creatures but also calm and strong when in the service of others – attributes that Sue certainly shared and perhaps why she loved horses so much.
Sue showed a huge sense of caring, empathy and efficiency for 15 years at Wexham Park Hospital. One of Sue's greatest gifts was her welcoming smile.
With her friendly manner she was able to calm the worried.
Perhaps they were coming for the first appointment for something "scary" or were visiting a sick or injured friend. She may not have been sure what she did but she was expert at it.
Sue knew many people and many that we both knew. If a friend had an appointment she always kept their confidence and never told me.
It was never about herself – it was always about helping others and putting others first. Perhaps this helps explain why she kept her own illness from everybody for so long.
Sue loved the simple things in life:
  • Making things out of play doh at her hospital bed
  • Hot Springs and Snowball fights in New Zealand
  • Dreaming of fairies
  • Kitty her cat
  • Singing along to Abba
  • Swimming and Walking
  • And simply just listening to people and working out what she could do to help
I have some lasting memories of Sue’s courage and determination over the last few months – far too many to mention.
Many people will be aware of her on/off relationship with her NHS supplied wig after chemotherapy.
She was very happy to wear it and also happy to fling it off when it itched or made her head too hot.
The wig had a character of its own – it was even offered a saucer of milk by a close friend. Sue found this hilarious.
Sue had many hidden strengths. Only just a month ago she stood up in front of a group of people and practised her speech for her sister’s wedding – 5 minutes of off-the-cuff, inspiring stories about a great friend.
Unscripted and engaging – it showed a Sue that felt passionately about the people in her life and a courage and generosity that was uniquely Sue.
Next we’ll hear a piece of music that means a lot to Sue and I.
Sue and I listened to it in the hospital and it was the first piece of music myself and Sue’s parents heard after Sue’s passing.
I hope it gives you a few minutes to reflect on how Sue touched your life.
Thank you
Although these where my words and thoughts my brother Paul was a great help in pulling them together, and I would like to thank him for all his help and support.
 
Music “Pretty Amazing Grace” by Neil Diamond
 
Paul Belcher reads “She is gone”
You can shed tears that she is gone
Or you can smile because she has lived
 
You can close your eyes and pray that she will come back
Or you can open your eyes and see all that she has left
 
Your heart can be empty because you can't see her
Or you can be full of the love that you shared
 
You can turn your back on tomorrow and live yesterday
Or you can be happy for tomorrow because of yesterday
 
You can remember her and only that she is gone
Or you can cherish her memory and let it live on
 
You can cry and close your mind, be empty and turn your back
Or you can do what she would want: smile, open your eyes, love and go on.
 
David Harkins
 
Hymn “All Things Bright and Beautiful”

All things bright and beautiful,
All creatures great and small,
All things wise and wonderful,
The Lord God made them all.


Each little flower that opens,
Each little bird that sings,
He made their glowing colours,
He made their tiny wings.

The purple-headed mountains,
The river running by,
The sunset and the morning,
That brightens up the sky;

The cold wind in the winter,
The pleasant summer sun,
The ripe fruits in the garden,
He made them every one;

The tall trees in the greenwood,
The meadows where we play,
The rushes by the water,
To gather every day;

He gave us eyes to see them,
And lips that we might tell
How great is God Almighty,
Who has made all things well.
Closing Prayers
 
Departure music “Dancing Queen” by ABBA
 
In lieu of flowers donations can be made to '1st Iver Heath Scout Group' c/o E. Sargeant and Son, Church Street, Slough, SL1 1PJ or via a collection at the Church.
The money collected will be shared with a number of charities as per Sue’s wishes.
 
Thank you for wearing an item of pink clothing. Pink was Sue’s favourite colour and it was her wish that this service should be a celebration.
 
 
To celebrate Sue’s Birthday Day.
I would like to invite you to a Birthday Party kindly hosted by my sister Sarah Carter.
 
My Sister and Brother in Law kindly offered the use of there house and kindly prepared all the food for what I called the “after show party” my thanks also go to Rod and Anne.
I would also like to thank Sharon for helping sort the flowers in the Church and the Birthday Cake at Sue’s Party.
Martin and Sharon also did a lot for Sue and myself in the final weeks at Wexham Park. And I would also like to thank Mark, Helen and Della for their support while Sue was in Swindon hospital.
There are many that sent cards and good wishes to Sue while she was ill and to myself once she had drifted away. I would like to thank you all.
 

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May 9th, 2008
09:05 pm

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Memories
Sue's condition deteriorated suddenly 3 weeks ago and she was admitted into hospital. 

She passed away peacefully during the morning of Monday 5th May. Martin, Robin and Phyllis were with her in the hospital.

Some of us felt that we and many of her friends might like to share memories of Sue and to celebrate her life.

Please post your messages as Comments on this entry.

Regards
Helen.
(family friend)

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March 27th, 2008
11:47 am

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Hi all its me again !

Martin & I are now back from our trip to my parents.  That was a nice break as I also got to see my sister.

For easter my sister gave me 4 box's of chocolate fingers.  I am now munching my way through them.

I've also now started my scrap book.  This was with the help of my friends.

In may Martin & I weill be going away on a holiday.  We are both looking forward to it very much.

Hopefully soon we will also be having some double glazzing fitted.  That I am sure will be quite  a messy job. 
time to go to the parents I think!  I weill leave Martin with the mess!!

Well I think that I will now go a get dressed as I am sat here in my pyjamers & dressing gown.

I weill write soon love sue

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March 17th, 2008
10:18 am

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Hi All
Sorry its taken me so long to write. I've been a bit busy.

Now I am over my cold.  Martin & I have been on a mini break in London. We went to see two show's the Lion King and also Joesph.  Both of which were good, but I think that Joesph was the better show. 

On Saturday (just gone) Martin & I went to some friends in Swindon for the day.  Which was very nice.
Sunday I went riding.  That was great.  It took a while to get used to riding again.  But once I had it was great.

Well for the week leading up to easter & the easter break I shall be in Trowbridge and Martin is joining at the weekend.

So its good bye from me for now.

chears  sue

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February 21st, 2008
05:43 pm

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Hi All

Just to let every body know what i've been doing recently

Well thats not much.  Because I've had a cold.  So I've been to the Drs to get some antibiotics (sorry can't spell )
I know thats what spell check is for!!

Going back to the cold, that was Monday I've spent  two or three days either in bed or sat on the sofa watching t.v. (turning my brain to mush as Martin says)

Today is Thursday and I'm feeling a lot better. So much so that I have been attempting to do Martin's paper work.   ( its taken all day just to clear his desk )

We did however  go out for lunch.  

Well I remember, I said in the last blog entry that other people could post pictures to the blog but my friend (who know's more about these things than me) said  unfortunatly this is not possible sorry.

Although if you have any pictures that you would like me to post please send them to my email address sue@24-7electric.net and I can get Martin to post them for me.

I'm now going to have a nice warm bath and read my book I think.

I will be in Wiltshire all of next week with my parents.  So I will write again soon

Many thanks again for reading the blog   Sue 

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February 12th, 2008
10:03 am

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 Hi All

Just a quick catch up.  Just to let you all know, I went to see de Harris yesterday she had good news for us. And a but.  The good news which is more in portant, I am now in reminsion & also the Dr said i'm ok to ride if I am carefull.
That made me very happy.  My family are also very happy, with this out come.

Last Thursday I had a girlie night with some of my friends & my mum came too.  The evening went extremly well.

On saturday I went to visitiGypsy ( a pony that I've been riding)  lots of tears later.  She is still just as cuddly.

Now I am thinking of going to have a bath.  (NIce & walm).

Oh by the way people can post photo's to this blog.  But sensible one's please.

Oh well i'm off to have my bath now as the heating has gone off. I can't have hot and the heating on.  It doesn,t 
work like that.

speack to you soon. ( by the way I/m still in Slough untill next Wednsday or there abouts)  s

from sue
 

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February 4th, 2008
08:38 pm

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Hi Al
Just a quick up date.  I am now back in Slough, as today Monday 4th Feb I had to go for a CT scan. Which was fine until they had to inject me with dye. due to a bruised vein it took the lady two attempts to put the needle in.
(ouch)  and I have to have a blood test on friday.  Now that's really  going to hurt  (ouch, ouch).

This week is going to be very busy.  As Martin & I have something planned for every day exept Wednesday.
This also includes a busy weekend.

On Thursday my mum is coming to visit because on Thursday night we are having a girly meal out, with friends from work.

Friday me & my mum are planning a shopping trip into Windsor.  Which I'm looking forward too.

This is my 2nd attempt at writting todays entry as I lost the 1st one.

So for now I'm signing off from sue
 

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January 30th, 2008
12:02 pm

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Hi All

Just a quick up date on how i'm doing.  At the moment I'm having my week in Wiltshire, returning to Slough on 
Saturday at some point.

Today is Wednesday and I'm sat in the office doing computer stuff. (like up dating blog).

 Infact, better than I did last time around.  Maybe that's becacuse I had shingles coming.  Now that i've almost finnished the medicine for the shingles. I feel much better.

We have not done much. I've been to Chippenham with my dad to return some box's to a study centre. 
As I am now feeling better, my dad allowed me to drive his car back, from Chippenham to Trowbridge.

On Friday we are planning a trip to see my sister.  That is if the weather allows and it does not snow.

Allthough I do like the white stuff ( ask Martin!!)


Well I think its now time to go and make some lunch. 

so by for now sue.



 


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January 25th, 2008
08:49 am

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 Hi guys

Thank you once again for all the kind comments on the blog.
On Monday I had my 5th treatment which seemed to go well.  Now I only have one more chemo treatment to go.

Today is Friday @ 8.50 am. I am up so early because Martin and his friend are laying flooring in our kitchen.

Yesterday and the day before I had a blooby day. As I was not feeling so well.  But today I do feel better so I plan to go out and about. Tescos shopping I think.

Wednesday my friend from work, came round to see me & Martin.  This was very nice.

On sunday I shall be returning back to Wiltshire for a week. I will be back in Slough for the 4th Feb 08 as I have a
CT Scan booked to check on progress. 

So I will be signing off for now  from sue

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